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Diaphragm Pacing CH 01-Diaphragm Pacing

March 1st, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu


CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:18

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Home Mechanical Ventilation CH 06-Clinic Visits

February 26th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:1

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Diaphragm Pacing CH 05-Jim’s Story

February 20th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:8:14

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Complex Sleep Apnea

February 14th, 2010

Complex Sleep Apnea is a described form of SDB (Sleep Disordered-Breathing) that has features of both obstructive sleep apnea and central sleep apnea.

Duration : 0:6:8

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Home Mechanical Ventilation CH 04-The Home Stretch

December 19th, 2009

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:59

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Sleep Apena Explained – Diagnosis

November 30th, 2009

In this short video the main character gets a diagnosis to his sleep apnea. This video explains how sleep apnea/hypopnea is caused. Since this video has been released Central Sleep Diagnostics has made countless advancements to provide better then lab quality testing at home. If your getting a sleep study, shouldn’t you get it where you sleep? For more information please visit our homepage: www.centralsleepdx.com

Duration : 0:3:25

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What is Central Sleep Apnea ?

November 15th, 2009

Central Sleep Apnea or CSA happens when your brain doesn’t send proper signals to the muscles that control your breathing. This condition is different from obstructive sleep apnea, in which you can’t breathe normally because of upper airway obstruction. Central sleep apnea is less common than obstructive sleep apnea.

Central Sleep Apnea can be caused by a number of conditions that affect the ability of your brainstem — which links your brain to your spinal cord and controls many functions such as heart rate and breathing — to control your breathing.

A video that describes Central Sleep Apnea, Diagnostics and general Q & A about Central Sleep apnea.

All About Central Sleep Apnea.

Central Sleep Apnea, An Issue of Sleep Medicine Clinics (The Clinics: Internal Medicine Book 9) 

Just about everything you might want to know about CSA or Central Sleep Apnea.

Dr. Peter Gay has put together a team of expert authors centering on the topic of Central Sleep Apnea. Focus will include articles on CSA due to other Medical Disorders, Cheyne-Stokes Respiration, Central Sleep Apnea and Cardiovascular Disease, Complex Sleep Apnea, Adaptive servo-ventilation Treatment, Drug induced central apneas- Mechanism and Therapies, ICSD-2 and AASM Practice Parameters, Alternative approaches to treatment of Central Sleep Apnea, and Infant central apnea on the following link.

Central Sleep Apnea, An Issue of Sleep Medicine Clinics (The Clinics: Internal Medicine Book 9) 

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Home Mechanical Ventilation CH 07-Ashley’s Story

November 11th, 2009

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:44

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Sleep Apnea

October 27th, 2009

Quick differentiation between obstructive and central sleep apnea.

Duration : 0:0:52

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Obstructive Sleep Apnea

September 13th, 2009

Duration : 0:0:40

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